02.12.2021
The Worthing10s Family Bluegrass Band
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 Our dad still goes to see his doctor 2x weekly for labs and infusions, as needed. His Blood Pressure has been running high, so BP meds have been prescribed. They have upped the dose 3x already! 

He also has no appetite, has a feeling of fullness before he eats, causing him to lose weight.  All this and more are being monitored by his medical team. We are so thankful for their continued care!

We pray this update find you all well and settling into holiday festivities!

God Bless!

If you feel lead to donate to our family, please go to the first page of our website www.theworthing10s.com and click on the GFM link! Thank you so much!

25.11.2021
The Worthing10s Family Bluegrass Band
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 Happy Thanksgiving!

This has been quite a ride that our family has been on since July 1, 2021. From Dad getting fungal pneumonia and a 23 day hospital stay in July and struggling to recover from that all summer, to his bone marrow transplant in October and all that entailed and then to getting an MSSA staph infection in November (and still recovering from that), it has been quite a ride! But, during all that time we also have a lot of praises! The Lord has been with us the entire time! We would like to take this moment to mention a few things that we are thankful for and for some wonderful praise-worthy news! First, we would like to thank you all for all the prayers and support! We could not continue to get through this without them! It means so much to our family! Next, we would like to tell you that Dad's 1st bone marrow biopsy results have come back to show that his donor's cells are at 100% in his body! This means that currently all new blood cells are from the donor, the chemo regimen killed off all Dad's cancer cells and no signs of cancer are present at this time! Praise the Lord! Dad will have several more biopsies in 2022 to make sure this continues to stay this way, but for now we are thankful for this news!The medical team has reminded us that the donor's cells are still fighting amongst themselves as some feel like they are at home in Dad and other cells do not feel at home, so the battle is still raging to see who will win! Also, GvHD (Graft vs. Host Disease) is still a very real possibility for Dad between now and day 100 (for acute GvHD) and forever after that (for chronic GvHD). The doctor stressed to take each victory "one day at a time" because tomorrow can bring about a sudden change. This is why Dad is monitored 2 times weekly to be sure they are on top of any changes his body may suddenly get and be able to treat it as quickly as possible. So, today, we are thankful for these current results!Dad's blood pressure has been running quite high for weeks, so blood pressure medication has been given to him to help with this. They recently had to up the dose because it is staying high. Please pray for this! The last thing we want is for GvHD to attack his heart! Our medical team is keeping a close eye on all of these things! So for now, we do take things one day at a time! We are thankful for each day that we have with Dad here at the house and not sick at a hospital. Even though we cannot be around any of our children that don't live at home on Thanksgiving or any day, we are thankful for each one of them and for the love and support they show our family each and every day. So, Happy Thanksgiving from the Worthington household! We are thankful for you all and for health !
14.11.2021
The Worthing10s Family Bluegrass Band
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 Titans vs. Saints today...fun rivalry at our house while our dad rests!

12.11.2021
The Worthing10s Family Bluegrass Band
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 This week was a bit rough with our dad. He got another bad headache, vision issues and upset stomach on Tuesday (and had to travel to an already scheduled checkup feeling so poorly!). Doctor's said the medication he is on may be the culprit, but unfortunately, he needs to stay on those meds...migraine and nausea meds were prescribed to help when the headaches occur...his BP is also on the rise due to medication...

and the benefit of the meds he needs outweigh the risks at this time... Our mom has become an overnight nurse, taking dad's temp, pulse o2, and blood pressure several times daily and also takes care of his 24/7 Penicillin IV. She said she is happy to do this, but it is above her pay grade! HahaDad sleeps and rests most if the time and does his best getting through the day. We make him good meals and pray his appetite improves. He gets labs done 2x weekly at Siteman, and gets any infusions, transfusions, etc. as needed each time. Our parents may be gone a minimum of 4+ hours or up to 8 or even 10 hours depending on what he needs. This recovery is a process...a long process... We are very thankful he is home again with us and not in the hospital and we can see him each day. Thank you all for your prayers, love, help and contributions you have made to help our family. This is a rough time for our family and we truly appreciate it!!!May the Lord bless your day.
07.11.2021
The Worthing10s Family Bluegrass Band
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 Update on our Dad...copied from our Mom!

Recently Dale and I were told by the medical staff just how sick Dale was when he arrived to Siteman on Oct. 30. Meaning, in less than 6 hours he went from a 99.3 temp at home to 101.4 in 3 hours...and by the time we arrived at the hospital 2ish hours later, he was 102.9 with his heart rate in the 120s, lethargic and BP not good. We were told later that he had been in mid-level sepsis upon arrival and if he had gotten there even 2 hours later this conversation would have been quite different. So I would like to Praise the Lord for protecting Dale! Praise Jesus for giving the Medical Team the wisdom needed to get him up here immediately for prompt treatment.Praise again for today's medications, knowledge and tests to help fight off this wicked infection!Yes, it was a terrifying roller-coaster ride to get to today. Dale was sicker than I have ever seen anyone. Past posts I made will tell you this. Lab tests discovered this as being a Staph infection called MSSA. Not to be confused with MRSA...both are awful and both are known as a super, sticky-bug. However, MSSA is treatable with Penicillin. (Another shout out of thankfulness to Jesus for this being a treatable infection!!)They took out Dale's central access line earlier in the week due to MSSA contamination. Infectious Disease has been wanting to get out his port as well for the same reasons as the possibility of MSSA contamination is high on the port...however even after 4 units of Platelets in 6 hours yesterday, his counts were not high enough for the port to be taken out; the risk of Dale bleeding was too high. That said, it was then decided the port will remain indefinitely and be the access point for the at-home Penicillin he will receive 24/7 for over 6 weeks.Once he is done with the medication regimen, there is a risk that the Staph will come out of hiding off the port and rear up again. (It will be after antibiotic treatment of this current infection that they will plan to take the port out to help prevent this). At-Home Healthcare will be coming out to show me how to use the pump and care for Dale with the administering of the Penicillin. This is a heavy responsibility for me. I do not want to be the reason he lands back into the hospital in the future. Please pray for wisdom for me to learn how to care for Dale properly where this is concerned. We get to come home today and begin yet another chapter in this long road to BMT recovery. Dale's doctor told us, yet again, that the BMT was only the beginning. It takes 6-12 months of hurdles and hiccups before he feels like he did before the BMT...not before cancer. This is crazy! But we are realizing how true those words are. One day at a time. It's amazing how God designed our bodies to fight infections from little things like dust and bacteria. The immunocompromised person cannot fight off any of that. We want Dale's immunocompromised body to stay as safe as possible.Praise the Lord for his Mercy and Grace and infinite love. (and thank you for reading this post, if you made it this far)
04.11.2021
The Worthing10s Family Bluegrass Band
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 From our Mom:

Today is day 30 from transplant. He had a bone marrow biopsy done yesterday to determine what percentage of cells are still his vs. his brother's (the donor). This takes 7 days for results.

In the meantime, the Staph infection was diagnosed as MSSA, known as a super sticky bug, and is being treated with Penicillin. He will be on that med for at least a month. He developed C.Diff, which is also being treated. All his blood counts have dropped and he receives transfusions as needed. There is a war raging in his body between his old cells and new donor cells from the transplant, and now the war between those cells and the MSSA Staph infection compound this.His body is going through so much!!! His central access line was removed due to possible contamination from the MSSA (because that infection likes to stick to foreign objects in the body). They are waiting for his platelets and WBC to go up before removing his port, also due to possible MSSA contamination. All this is a process, with time that needs to go by before the next thing can happen.Once the port is removed, they will place another central line back in so it can be accessed for future medicines and blood draws. (Including the at-home IV Penicillin he will be needing). Prayers that the MSSA treatment continues to work or the medical team can find the Penicillin that will work is needed. One medication, to boost cell growth, has caused him to have severe bone pain to the point of keeping him awake at night, which has been rough on him, however he stays in good spirits despite these hurdles and is thankful for all the prayers, which is helping our family get through this.We know the Lord is with us...He shows us everyday...Most recently by an unexpected love gift from the church of Bro. Jeff Downard, Winkle Baptist, who blessed me with several nights at the Doubletree hotel, which is attached to Siteman Cancer Center. This was HUGE because I was sleeping in Dale's room on a couch and once Dale was stable, I was sent home to shower (due to the C.Diff) and now I don't have to travel back and forth! I can be super close to my husband and still properly shower and (try to) rest. I cannot thank them enough, and Christina Peper-Lacy, who God used to bring this whole blessing to me. Praise the Lord for this wonderful congregation and pastor who listened to God and brought this blessing to me. I am truly humbled! And...thank you all for your continued prayers!!!
01.11.2021
The Worthing10s Family Bluegrass Band
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 So, in all the hullabaloo of our parents getting home from our Dad's Bone Marrow Transplant (BMT) on Oct. 24th, resting and enjoying us girls at home, we failed to update y'all on our band's page. Unfortunately, our dad is back at Siteman with a high fever of 102.9...and tests show a Staph infection in his bloodstream. It appears the incision (made to place his central line before the BMT) somehow opened up and Bam! Less than 24 hours later...fever began. Our mother is with him and staying in the hospital room to help him through all this. He went through rounds of extreme chills and uncontrollable shakes between fever episodes as high as 103.1. However, today, November 1, we are happy to report the fevers and chills have subsided. The antibiotics are doing their thing! Staph infection is nothing to wink at and there will be plenty of long-term care needed to recover. Add that recovery to the BMT recovery and well, he has an even longer road ahead. Many more tests will be done this week to assess the situation. We appreciate your prayers and apologize again for being lax in updates. May the Lord bless you all for your help and love towards our family!

27.10.2021
The Worthing10s Family Bluegrass Band
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 Being home is always nice! Home made meals, a comfy couch and familiar surroundings, three doting daughters, and a wife-nurse making sure he takes all his meds, notes all symptoms, drinks plenty of water, walks a bit and rests a lot! We have made two trips to Siteman so far for labs and checkups. Yesterday's trip wore Dale out a lot.. He has not been given clearance to drive yet, but being in the car is rough as it is. Plus, all the walking and waiting for appointments can be hard on a healthy person. We are on day 22 after transplant...

Dale's blood tests yesterday showed all his blood numbers rising Praise the Lord! The doctors made sure we understood that he will be tired and worn out for months while his body rebuilds (even though the numbers rise) and it is a normal part of recovery. The average before a BMT feel like they did pre-transplant is up to a year, and then well over a year or more to feel like they did pre-cancer, but we are heading in the right direction and that's all that matters right now! The doctors keep enforcing "one day at a time"...please keep praying! His body is very weak and working hard inside to rebuild itself. This all takes time as the chemo has taken its toll.
21.10.2021
The Worthing10s Family Bluegrass Band
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 Update:

Once discharged from the hospital, the road to recovery is quite lengthy. Going home is only the first step. Dale's body is completely immunocompromised and protecting him is our number one priority! We will need to drive to St. Louis at least 2x a week for months and then eventually 1x weekly, clad in an N95 mask they gave Dale to wear at each visit, which will consist of various blood tests, a doctor's appointment for checking his progress- looking for GVHD issues; he may need transfusions of RBC and Platelets, injections of potassium, magnesium, etc. Testing like Bone Marrow Biopsies, chest x-rays, and anything else he may need.Some days we may be there a few hours, another it may be over 10 hours. The recovery is long, somewhat scary and uncertain. The Lord has gotten us through the transplant portion! Praise God! But prayers for the recovery are also needed. (I will be Dale's caregiver...making sure all these things take place; taking his temperature 2x a day and praying he has no fever, giving him all the meds he needs daily, wiping down all fixtures, switches and knobs daily, preparing nutritious meals, making sure he walks often to keep his lungs open and strength up, etc.) The doctor said Dale's immune system was completely stripped down to nothing and the slightest runny nose can send him into pneumonia. Then the doctor looked at me and said, "Susan, keep him in a well insulated bubble... (no pressure, no pressure) ...because the rebuilding of his immune system will take many months, (sometimes up to a year or more) before Dale can tolerate a virus." We appreciate y'alls prayers! As the doctor left he said"Today was a good day. Tomorrow may not be. Take it one day at a time because anything in this recovery can change quickly." Isn't that what the Lord says to do? Take things one day at a time? Matthew 6:34a 'Take therefore no thought for the morrow: for the morrow shall take thought for the things of itself...' Thank you for reading this...and for your prayers
18.10.2021
The Worthing10s Family Bluegrass Band
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 Update on Dad:

After several days of intense headaches, meds to help ease the pain, steroids to help the mouth sores, a lot of sleep, his counts zeroing out and the losing of hair (yes, I know what you're thinking ) it looks like we are standing closer to success!!Happy dance! Keep praying for healing and for his counts to begin to rise! Today is day +12! They say by day +16 we should see counts rise! The first 100 days are the most vital to get through!!! Thank you for praying for our journey so far.We are happy to report that today we have seen a slight rise in his counts!! This is great news! They put him on steroids to help with the mouth sores and Praise the Lord! would you know that took the headaches away?!?! Yesterday was a good day compared to the preceding days and today he is doing well and tried to eat breakfast! Thank you all for praying! Keep at it! Our God is listening and working over here! Dad's doctor said as long as his counts continue to rise and no GVHD issues occur, we should keep going forward with little trouble!!

 

 

 

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